vedscollaborative.org

vedscollaborative.org is a live English-language website hosted on Cloudflare, Inc. (AS13335) in the United States, served by Nginx. cl0q first saw it on 2026-09-06 and last crawled it on 2026-09-06. It resolves to 104.21.2.178. Its favicon is fingerprinted by SHA-256, so you can find every other site that serves the same icon.

How the site describes itself:

VEDS Collaborative - The VEDS Movement

The VEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of Vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by it. Mission To sustain a collaborative network of diverse stakeholders, individuals, and organizations, developed through a patient-centered outcomes research initiative (PCORI) to understand patient needs and determine the research methods best suited to study the adverse health implications associated with VEDS. Vision The VEDS Collaborative is dedicated to supporting the VEDS community in driving patient-centered outcomes research to improve the management of VEDS...